Thyroid......Cancer. *update Sept 21st* (after surgery #2)-

[jacksorbetta]

It's official, I have cancer. :cry:

The surgeon gave me the news at 4:10 pm. In attendance was myself, Almighty Dr, 2 residents, and a clergy person. Huge crowd, tiny room. I knew it was bad news from the git-go.

Diagnosis: Papillary Thyroid Cancer, Follicular variant. Metastatic (meaning it has spread to lymph nodes, and possibly elsewhere). They apparently removed a bunch of nodes, and found 1 with cancer, and another with "suspicious for metastasis" . This means it's likely in a bunch of nodes already.

Next Step:

PET scan, MRI, bloodwork, and a bunch of other invasive crap I can't stomach. *None of this was ever done*
Completion Thyroidectomy with neck dissection *Surgeon skipped the neck dissection*
6 weeks of being hypothyroid until I get the glamorous RAI treatment (radioactive iodine), and put into quarantine in the hospital. *Waiting on BCCA's decision whether I need this*
another scan, tumour marker bloodwork, then meds *On meds, waiting on blood work, no scans scheduled*


Wash, rinse, repeat every 3 months on the scans and bloodwork until scans are clean for a year, then annual testing there after. *No follow up until Sept 2013*

I'm still in shock and progressing into anger-mostly that the Dr refused to remove the whole diseased gland to begin with. Now I have to suffer through a repeat surgery when it could have been avoided.>:(

Starting tomorrow, I'll be planning childcare etc for my recoup time. This won't be easy.....

Update July 31st

Surgery #2 Sept 7th-Completion Thyroidectomy
-----------------------------------------------------------------------------------------------------------------------------------------------------

Original post:

I'm having surgery on Friday (the 13th :confused:) for a large solid mass they found in my thyroid. I'm pretty much freaking out, and hope someone can reassure me it's not horrible to go through.


Thanks.

[45ED]

I'm having surgery on Friday (the 13th :confused:) for a large solid mass they found in my thyroid. I'm pretty much freaking out, and hope someone can reassure me it's not horrible to go through.

Thanks.

Surgery already? Wow. This is what I get for not keeping up.

[jacksorbetta]

Surgery already? Wow.

It's been somewhat rushed at this point. I got a call today to go in for a CT scan and possible MRI tomorrow as the anesthesiologist wants current images. Safe to say the nodule has had some growth in the last month :(. So... they got me scheduled for surgery as soon as a spot opened. Ugh.

[45ED]

It's been somewhat rushed at this point. I got a call today to go in for a CT scan and possible MRI tomorrow as the anesthesiologist wants current images. Safe to say the nodule has had some growth in the last month :(. So... they got me scheduled for surgery as soon as a spot opened. Ugh.

Ugh, that does sound bad. But waiting in limbo when the doctor doesn't bother to contact you was just as bad, I imagine.

[jacksorbetta]

Ugh, that does sound bad. Is it hard to eat solid foods?

Everything is hard to eat now, and I almost choked on a Sudafed last week. What's worse, is the shortness of breath. The doctor's seem to think my trachea and esophagus are being compressed now. To give you an idea of what the nodule looks like: in April it was 3.9cm (size of walnut), it is now 5.2cm (size of a lime)

[AudiDude]

My friend had it done, my mom had it done, my sister had it done, my buddies wife had it done. They all said the same. Area was tender for a few days and that turned into stiffness and then back to normal. Any scars were where your neck creases and wasnt visible.

My buddies was the most severe. Everybody has had no further issues.

All the best and I think you will be fine.

[jacksorbetta]

My friend had it done, my mom had it done, my sister had it done, my buddies wife had it done. They all said the same. Area was tender for a few days and that turned into stiffness and then back to normal. Any scars were where your neck creases and wasnt visible.

My buddies was the most severe. Everybody has had no further issues.

All the best and I think you will be fine.

Thanks. I was told my scar will be larger than most, as the nodule is so big, they have to go higher up my neck.

[45ED]

Thanks. I was told my scar will be larger than most, as the nodule is so big, they have to go higher up my neck.

I remember when you mentioned a while back about difficulty swallowing solid foods. But to almost choke on Sudafed of all things and the growing now lime-sized lump...the quicker it's out the better.

Speedy recovery. And lotsa happy thoughts. For you and the kid.

[jacksorbetta]

I remember when you mentioned a while back about difficulty swallowing solid foods. But to almost choke on Sudafed of all things and the growing now lime-sized lump...the quicker it's out the better.

Speedy recovery. And lotsa happy thoughts. For you and the kid.

Thank you .:).

Wish my work was as understanding. They're giving me grief for taking time off. I got harangued today about needing the day off tomorrow for testing.>:(

[AudiDude]

Thanks. I was told my scar will be larger than most, as the nodule is so big, they have to go higher up my neck.

Like I said, my buddy got the "colombian necktie", my mom's, a lot smaller. It looks aggravated and red for a bit and then tones itself down. I've forgotten all about it and I notice everything (and like to mention it too!!). Saw him many times (last week even) and the scar doesn't draw my attention at all.

[45ED]

Like I said, my buddy got the "colombian necktie", my mom's, a lot smaller. It looks aggravated and red for a bit and then tones itself down. I've forgotten all about it and I notice everything (and like to mention it too!!). Saw him many times (last week even) and the scar doesn't draw my attention at all.

Lmao, nice of you to mention this to jacks three days before her surgery.

[Corleone187]

sry 2 hear

dont worry about the 13th, that is just superstition

[jacksorbetta]

Lmao, nice of you to mention this to jacks three days before her surgery.

Actually that made me lulz. Funny too that my brother said the same thing in his best Pacino voice:lol:.

[cheapmeister]

Hey good luck Jacks! Just eat jello afterwards. :lol:

[jacksorbetta]

sry 2 hear

dont worry about the 13th, that is just superstition


Hey good luck Jacks! Just eat jello afterwards. :lol:

Ty to both :).

I'm glad it's finally being taken care of, but nervous and a little scared too.

[epik89]

My mom had this surgery done. Basically she has to take pills everyday for the rest of her life.

She also has a scar that seems to be healing pretty well now. (its been over 3 months now)

at first she said hurt to talk or swallow anything and was basically just eating easy to swallow foods.

overall scary level would be 2/10

[Jimboski]

Best of luck Jacks!
I wish you a speedy recovery!

[jacksorbetta]

My mom had this surgery done. Basically she has to take pills everyday for the rest of her life.

She also has a scar that seems to be healing pretty well now. (its been over 3 months now)

at first she said hurt to talk or swallow anything and was basically just eating easy to swallow foods.

overall scary level would be 2/10

Thanks for sharing that :). it's not the actual surgery I'm afraid of, it's the "what will they find when they get in there". We don't know yet if it's cancer, since the type of cells tested in biopsy were follicular and Hurthle cell, both of which can only be determined as cancer after the thyroid is removed entirely and sent for scrutiny to pathology.

[Hello-]

Is it a complete removal or partial? Will you be on thyroid supplements for the rest of your life?

Sorry, I'm just really curious about this.

[jimmy-j]

my wife had her thyroid completely removed since she was like 12 or 13. she's been on supplements since then and on days where she forgets to take it, i can definitely tell in the way she looks and acts.

her one scar is a noticable one right at where her collar bones are in the middle of her neck and she has a smaller one about an inch above that.

[jacksorbetta]

Is it a complete removal or partial? Will you be on thyroid supplements for the rest of your life?

Sorry, I'm just really curious about this.

The surgeon's plan 3 months ago was a Sub-total (leaving about 1gram of tissue), but with the recent growth, most likely it will a complete removal. Won't really know until they get in there.

[AudiDude]

Talking to my mom right now. You can't see the scar and I am three feet away. Of course she knows my friend and they were talking at a party on Canada day. She says he had to have his lymph nodes removed as well. He's absolutely fine and all the difficulties he was having before are all gone. Again, the scar looks red and angry for a bit and kind of disappears after some time.

[ji2o0k]

all the best jacks....hoping everything checks out to be normal and that surgery goes smooth as butter...

we will be thinking of you this Friday! :)

[stealth]

Sorry to hear...best wishes!

[FightCanada]

I had a total thyroidectomy in Nov 2010 due to cancer. My nodule was massive, it was something like 5x9x5 (think 2 rapefruits lodge in your neck). According to the surgeon it blocked 60% of my airway. Always thought I had asthma.

Here's my experience.. if it's not cancer, the surgery was the easy part. It's the adjustment period after that's a pain in the ***** .

The surgery
-Went smoothly, but took a few hours longer than expected due to its size
-Spent 5 days in the hospital. My parathyroid was banged up so my calcium levels were messed up for a few a while. I had to go on supps until it healed and restored.
-Get a catherter (sp?) put into your arm. I was jabbed so many times without one it hurt like crazy. Eventually had to ask the nurse to use my other arm.
-I was high as a kite after surgery but could easily talk. My voice did drop off if I talked for too long.
-Pain was minimal.. even with a tube jabbed into your neck to drain blood over the week. Most painful part was the nurse cutting my stitches since they were done so tightly.
-Few weeks later you have radiation. Ingest a pill and you are kept in an isolated room for 5 days until you are no longer radioactive. Nurses wear a gauge when they drop off food so they don't get overly exposed.

Aftermath
- You will feel like crap for the few months to year until your medication gets adjusted properly. I was exhausted 24/7 and I was in shape prior. Worked out 6 days with weights and cardio.
- Constant bloodwork to check levels
-Thyroid meds daily.
-If it is cancer you will be put on a high dose of thyroid meds causing you to be hyperthyroid. Standard procedure for cancer patients.
-Voice and everything came back normal. Although it seems to have a deeper voice.
-Scar is relatively small, 3 inch across the base of my neck, but you can definitely see it. I had a classmate ask if I got into a knife fight. lol

1 year later
-Follow up scan.
-All clear ftw.

It'll be a journey for sure.. there are many more steps to what I described. They all say the best cancer to have is thyroid because it's no aggresive.. but given how much thyroid controls in your body plus it's cancer, it sucks. It's the management after the cancer that's the worse in my opinion.

[jacksorbetta]

all the best jacks....hoping everything checks out to be normal and that surgery goes smooth as butter...

we will be thinking of you this Friday! :)


Sorry to hear...best wishes!


I had a total thyroidectomy in Nov 2010 due to cancer. My nodule was massive, it was something like 5x9x5 (think 2 rapefruits lodge in your neck). According to the surgeon it blocked 60% of my airway. Always thought I had asthma.

Here's my experience.. if it's not cancer, the surgery was the easy part. It's the adjustment period after that's a pain in the ***** .

The surgery
-Went smoothly, but took a few hours longer than expected due to its size
-Spent 5 days in the hospital. My parathyroid was banged up so my calcium levels were messed up for a few a while. I had to go on supps until it healed and restored.
-Get a catherter (sp?) put into your arm. I was jabbed so many times without one it hurt like crazy. Eventually had to ask the nurse to use my other arm.
-I was high as a kite after surgery but could easily talk. My voice did drop off if I talked for too long.
-Pain was minimal.. even with a tube jabbed into your neck to drain blood over the week. Most painful part was the nurse cutting my stitches since they were done so tightly.
-Few weeks later you have radiation. Ingest a pill and you are kept in an isolated room for 5 days until you are no longer radioactive. Nurses wear a gauge when they drop off food so they don't get overly exposed.

Aftermath
- You will feel like crap for the few months to year until your medication gets adjusted properly. I was exhausted 24/7 and I was in shape prior. Worked out 6 days with weights and cardio.
- Constant bloodwork to check levels
-Thyroid meds daily.
-If it is cancer you will be put on a high dose of thyroid meds causing you to be hyperthyroid. Standard procedure for cancer patients.
-Voice and everything came back normal. Although it seems to have a deeper voice.
-Scar is relatively small, 3 inch across the base of my neck, but you can definitely see it. I had a classmate ask if I got into a knife fight. lol

1 year later
-Follow up scan.
-All clear ftw.

It'll be a journey for sure.. there are many more steps to what I described. They all say the best cancer to have is thyroid because it's no aggresive.. but given how much thyroid controls in your body plus it's cancer, it sucks. It's the management after the cancer that's the worse in my opinion.
Thanks for your candor. I liked your honesty and touch of humour :). That's a lot to deal with, but you're clearly a strong guy. Mind if I message you with questions if I need to? Thanks again


Talking to my mom right now. You can't see the scar and I am three feet away. Of course she knows my friend and they were talking at a party on Canada day. She says he had to have his lymph nodes removed as well. He's absolutely fine and all the difficulties he was having before are all gone. Again, the scar looks red and angry for a bit and kind of disappears after some time.

Thanks guys. I sincerely appreciate your kind thoughts, and insight. I had a really crappy day, with a CT scan that wasn't (stupid hospital made a scheduling booboo, and didn't book it online, so the anesthetist never showed up, so now if it needs to be done it'll be Friday morning. I managed to finagle tomorrow off to decompress and spend some time with the kiddo before I go in, and I hope to update on the weekend.

[mrcantrell]

Best of luck to you for a smooth procedure and a speedy recovery.

[FightCanada]

Thanks for your candor. I liked your honesty and touch of humour :). That's a lot to deal with, but you're clearly a strong guy. Mind if I message you with questions if I need to? Thanks again



Thanks guys. I sincerely appreciate your kind thoughts, and insight. I had a really crappy day, with a CT scan that wasn't (stupid hospital made a scheduling booboo, and didn't book it online, so the anesthetist never showed up, so now if it needs to be done it'll be Friday morning. I managed to finagle tomorrow off to decompress and spend some time with the kiddo before I go in, and I hope to update on the weekend.

Feel free. Always glad to help.

I re-read my post.. should have proof read.. lol.

[jacksorbetta]

Feel free. Always glad to help.

I re-read my post.. should have proof read.. lol.

Thanks. And hehe at the proofreading. The "rapefruits" made me do a double take lol

[whampoa]

If removing only part of the gland, ask the surgeon/doctor to remove the correct side.

They remove the wrong side when my uncle is put under the knife.

And now, he had to take the pill for the rest of his life.

[jacksorbetta]

I had my surgery at 8 am yesterday, and they sent me home at 130pm. I think I should have been kept in longer, as the incision was still bleeding, I was nauseous, and in serious pain. Small city hospital who treats/streets ya though :(.

I was super nervous going in, and had some confusion about what they were doing because I had been told by 3 different doctors 3 different scenarios. Turns out, I had a Lobectomy with Isthmusectomy. Once pathology comes back in a week or so, we'll know if I have to go back in to have the other lobe removed. HOPING I'm all done. I have a 5 inch scar midline on my neck-they weren't able to place it in the skin crease, as he needed more "visual field" so see exactly how far down the tumour went. It's closed with stitches (internal and external). Normally they use a type of glue, but I'm allergic to adhesive, and after a quickie allergy testing, I swelled up instantly on my arm where they applied it. So now I look a bit like Frankenstein, but hoping it heals well.

Took most of the night for the anesthesia to wear off, and I had constant nausea until it did. I spent all afternoon and evening lying on the couch, and running to throw up. Needless to say, this wasn't helpful in keeping the pain meds down.

Anyway, it wasn't as bad as I had worried, but I'd not want to do this again. I have some serious neck stiffness, and can't turn my head, and turning over in bed was painful.

[MrDisco]

Good to hear. Hopefully you're done with this.

[45ED]

Good to hear. Hopefully you're done with this.

+ 1 000 000

http://farm4.static.flickr.com/3016/2880297343_4326c9125a.jpg

[FightCanada]

Wishing you a speedy recovery.

[LordofthePing]

Come on OP, your surgery was yesterday. Time to update.

[ngaiden]

All the best and have a speedy recovery

[Jimboski]

Good to hear. Hopefully you're done with this.

+ 1 000 001; Going by 45ED's post!

[jacksorbetta]

Come on OP, your surgery was yesterday. Time to update.

See post # 31 :p.

Mini-update: as the day wears on, I'm in more discomfort, but less woozy. I managed to keep some pain meds down, after eating a pancake. Not very hungry though, and though exhausted, can't sleep either.

Edit: thanks for all the well-wishes!

[Manatus]

Best wishes and hope you're back to normal soon!

[setell]

Have a speedy recovery jacks and all the best!

[missmaldita]

Did they give you anything for the nausea? Hoping for a speedy recovery! :)

[wilsonlam97]

Eh have a quick recovery eh.

[deltone]

Oh wow jacks. Sorry to hear that you are going through this. Also sorry your employers are being such jerks about the whole thing, as though you asked for this to happen to you. Keep your spirits up. You are one strong lady and this is something you will come through with flying colours. My thoughts are with you and I wish you a very speedy recovery! Please keep up the updates!!

[ji2o0k]

get well soon jacks...sounds like everything went ok...aside from the nausea......rest up and get better!

[jacksorbetta]

Thanks for asking. I ended up going to the emergency after calling my surgeon. When I woke up from my nap this afternoon, my neck was very swollen and red, and the pain was awful. Seems it was starting to get infected. He wrote me a scrip for a strong antibiotic (maybe should have had it yesterday???), and sent me on my way. I took some advil, iced it down and I'm finally feeling better :)

[deltone]

Thanks for asking. I ended up going to the emergency after calling my surgeon. When I woke up from my nap this afternoon, my neck was very swollen and red, and the pain was awful. Seems it was starting to get infected. He wrote me a scrip for a strong antibiotic (maybe should have had it yesterday???), and sent me on my way. I took some advil, iced it down and I'm finally feeling better :)

Oh my........I'm so sorry to hear that you had to have this added to what you are already going through. I'm glad to hear you are on the new Rx and hopefully this sets you on the right path to a quick and successful recovery. wow, just so much to go through. :o( I guess your husband is being real helpful with your young fellow. How is he dealing with seeing mom in pain?

[jacksorbetta]

Oh my........I'm so sorry to hear that you had to have this added to what you are already going through. I'm glad to hear you are on the new Rx and hopefully this sets you on the right path to a quick and successful recovery. wow, just so much to go through. :o( I guess your husband is being real helpful with your young fellow. How is he dealing with seeing mom in pain?

Was able to sleep last night, so I feel a wee better today. The little guy is confused that mom won't let him climb all over her :P. His dad is here taking care of him, TG. Kiddo is so active, there's no way I could remotely keep up with him or watch him properly. Thanks again for your kind thoughts.

[setell]

Thanks for asking. I ended up going to the emergency after calling my surgeon. When I woke up from my nap this afternoon, my neck was very swollen and red, and the pain was awful. Seems it was starting to get infected. He wrote me a scrip for a strong antibiotic (maybe should have had it yesterday???), and sent me on my way. I took some advil, iced it down and I'm finally feeling better :)


Was able to sleep last night, so I feel a wee better today. The little guy is confused that mom won't let him climb all over her :P. His dad is here taking care of him, TG. Kiddo is so active, there's no way I could remotely keep up with him or watch him properly. Thanks again for your kind thoughts.

Glad to hear that things are much better today. Sorry to hear you had to go back to the ER and got infected. I hope there are no more hiccups and that things will be smooth sailing going forward for a full recovery. :)

[king_george]

I had my surgery at 8 am yesterday, and they sent me home at 130pm. I think I should have been kept in longer, as the incision was still bleeding, I was nauseous, and in serious pain. Small city hospital who treats/streets ya though :(.

I was super nervous going in, and had some confusion about what they were doing because I had been told by 3 different doctors 3 different scenarios. Turns out, I had a Lobectomy with Isthmusectomy. Once pathology comes back in a week or so, we'll know if I have to go back in to have the other lobe removed. HOPING I'm all done. I have a 5 inch scar midline on my neck-they weren't able to place it in the skin crease, as he needed more "visual field" so see exactly how far down the tumour went. It's closed with stitches (internal and external). Normally they use a type of glue, but I'm allergic to adhesive, and after a quickie allergy testing, I swelled up instantly on my arm where they applied it. So now I look a bit like Frankenstein, but hoping it heals well.

Took most of the night for the anesthesia to wear off, and I had constant nausea until it did. I spent all afternoon and evening lying on the couch, and running to throw up. Needless to say, this wasn't helpful in keeping the pain meds down.

Anyway, it wasn't as bad as I had worried, but I'd not want to do this again. I have some serious neck stiffness, and can't turn my head, and turning over in bed was painful.

Hey at least you were good enough to run and throw up. After my surgery if someone didn't bring me a bucket, I simply let fly. :lol:

You'll get better soon, take it from me, the one person in here who has undergone surgery as serious as yours. As a matter of fact, you'll be telling your surgery stories to people for years until they get sick of it. You'll even add macabre humour to spice it up. :lol:

Keep on the path to recovery though. It may be long and painful but you'll feel so much better when you're back to normal (whatever that may be).

Wear the scars like a badge and cherish the chance of retelling your story to those who ask about it.

The worst part is the kids. I had 3 under 6 years old when I was laid up. Use them (or him) as a leverage to make yourself better and heal up. It works.

Anyways good luck in the future and hipefully you'll never have to do this again. I know I wouldn't.

ETA: I had to go back to the hospital six times because of side effects of medications and infections. Take the events as they happen and roll with it. You'll be better soon.

[jacksorbetta]

Hey at least you were good enough to run and throw up. After my surgery if someone didn't bring me a bucket, I simply let fly. :lol:

You'll get better soon, take it from me, the one person in here who has undergone surgery as serious as yours. As a matter of fact, you'll be telling your surgery stories to people for years until they get sick of it. You'll even add macabre humour to spice it up. :lol:

Keep on the path to recovery though. It may be long and painful but you'll feel so much better when you're back to normal (whatever that may be).

Wear the scars like a badge and cherish the chance of retelling your story to those who ask about it.

The worst part is the kids. I had 3 under 6 years old when I was laid up. Use them (or him) as a leverage to make yourself better and heal up. It works.

Anyways good luck in the future and hipefully you'll never have to do this again. I know I wouldn't.

ETA: I had to go back to the hospital six times because of side effects of medications and infections. Take the events as they happen and roll with it. You'll be better soon.

Thanks. That's very encouraging, and I knew you'd understand since you've not had an easy time of it either.

I'm not ready to show the scar :(. People were staring at me really weirdly yesterday in the hospital waiting room, and the pharmacist at Shopper's looked a bit green haha. It looked pretty gross, and I'm not allowed to cover it with a bandage. Choosing to stay home for a few days until the swelling goes down. You'd think by now they'd have created a skin tone stitch? instead of those gross black ones!

[Syne]

Hey jacks, when you get back to work I'd suggest having a serious sit-down with HR and the people who gave you a hard time about missing work for this.

It was a major surgery, possibly lifesaving and it was really unprofessional for them to be piling on to your stress like that, and trying to make you feel guilty about missing time. Don't rush back to work either. Take your time. Any employer who doesn't understand your situation must be completely ignorant of needs other than their own.

[M1K3Z0R]

Chicks dig scars. If anyone asks, tell them you fought a bear and won :P

But in all seriousness, glad to hear you are doing better!

[king_george]

Thanks. That's very encouraging, and I knew you'd understand since you've not had an easy time of it either.

I'm not ready to show the scar :(. People were staring at me really weirdly yesterday in the hospital waiting room, and the pharmacist at Shopper's looked a bit green haha. It looked pretty gross, and I'm not allowed to cover it with a bandage. Choosing to stay home for a few days until the swelling goes down. You'd think by now they'd have created a skin tone stitch? instead of those gross black ones!

More stories you'll tell years from now. Remember the times well. I could bore you for hours with my hospital and recovery stories, especially the ones concerning the constipation caused by pain killers and the methods they used to relieve it.:-0

I had all staples, no old-fashioned stitches for this guy. Can you post or either pm me a pic of the scar? I'm very curious as to why someone might turn green. :lol:

My scar only shows when I shave my head but it starts at the temple, goes around the ear and ends right at the hairline. When I had staples it looked like a Frankenstein surgery job. People stared at me and then covered their kid's eyes.

[Jimboski]

Chicks dig scars. If anyone asks, tell them you fought a bear and won :P

But in all seriousness, glad to hear you are doing better!

OP Is a girl and Is married with kids?

[M1K3Z0R]

OP Is a girl and Is married with kids?

Even better. She can impress and/or terrify her friends, spouse, AND her children!

[Jimboski]

Even better. She can impress and/or terrify her friends, spouse, AND her children!

That has to be a joke!

[jacksorbetta]

More stories you'll tell years from now. Remember the times well. I could bore you for hours with my hospital and recovery stories, especially the ones concerning the constipation caused by pain killers and the methods they used to relieve it.:-0

I had all staples, no old-fashioned stitches for this guy. Can you post or either pm me a pic of the scar? I'm very curious as to why someone might turn green. :lol:

My scar only shows when I shave my head but it starts at the temple, goes around the ear and ends right at the hairline. When I had staples it looked like a Frankenstein surgery job. People stared at me and then covered their kid's eyes.

I'll see if I can snap a pic later. It's not totally gruesome right now, but it ain't purdy :p.

A friend of mine had this surgery years ago, but his went ear to ear with staples. It was horrifying, and that image was stuck in my head before I went into the hospital. Was actually pretty relieved to see it wasn't so huge.

Syne: that's the plan. I havent' even heard from work, so obviously they don't give 2 squats about me :(. I'm taking as much time as possible to heal, and probably an extra week or 2 to go to physio after, since I'm going to need therapy on my neck. It's very stiff and my posture is awful from staying hunched so I don't tug on the stitches.

[jacksorbetta]

If you have a weak stomach, do NOT click these links :razz:

http://i47.tinypic.com/2dueety.jpg

http://i48.tinypic.com/waksoo.jpg

http://i45.tinypic.com/2nq4bia.jpg





The red area above the incision looks like a puffy pillow. Better lighting would show it.

[Syne]

Those weren't so bad. You should be ship shape in due time.

Relax and enjoy your time off as best you can :)

[ji2o0k]

looks hawwwtttt to me babe.......looking good as always!!

Get better soon!

[jacksorbetta]

looks hawwwtttt to me babe.......looking good as always!!

Get better soon!


Those weren't so bad. You should be ship shape in due time.

Relax and enjoy your time off as best you can :)
lol thanks, you made me feel better. It is pretty gross in person, and believe me, feels worse than it looks.

[FightCanada]

If you have a weak stomach, do NOT click these links :razz:

http://i47.tinypic.com/2dueety.jpg

http://i48.tinypic.com/waksoo.jpg

http://i45.tinypic.com/2nq4bia.jpg





The red area above the incision looks like a puffy pillow. Better lighting would show it.

Looks like mine!

I should dig up my pics... i had a tube with blood draining out of it for 5 days.

[jacksorbetta]

Looks like mine!

I should dig up my pics... i had a tube with blood draining out of it for 5 days.

Please do if you can :). Is it normal to have the drains with a total? My surgeon looked at me like I was crazy when I asked if i'd need one, so I'm pretty curious for more info.

[tsxnation]

Glad to hear you are doing well OP. :)

[king_george]

If you have a weak stomach, do NOT click these links :razz:

http://i47.tinypic.com/2dueety.jpg

http://i48.tinypic.com/waksoo.jpg

http://i45.tinypic.com/2nq4bia.jpg





The red area above the incision looks like a puffy pillow. Better lighting would show it.

Awesome!

Not as bad as I imagined though. I'll try to dig up a photo or two from my surgery. Not quite like yours since hair covered a lot of the cut but impressive nonetheless.

Sure brings back memories though.

[jacksorbetta]

Day 5:

Pain is somewhat diminished. I only have to take Advil every 6 hours and my chest is no longer aching. The bruising is widespread though, and a lovely mustard colour. *ew*

I'm still hibernating in the house, and have no plans to go anywhere for a few days yet, though I do need to get my nails done. I had to file/remove all the gel colour off both hands and toes before my surgery, and looking at them depresses me lol.

Other than that, I guess I'm finally on the mend.

[mrperfect]

Cant believe I didnt see this thread earlier but whatever... Anyways glad to see that things went well for you Jacks, I wish you all the best and a speedy recovery..

Keep smiling.. :)

[deltone]

Glad to hear that things are getting better jacks. Each day will only get better.

[MrDisco]

Other than that, I guess I'm finally on the mend.

http://3.bp.blogspot.com/-ibRlrGDUwd4/Tz2xnD7-28I/AAAAAAAAAvg/goKvb9KJ_vE/s320/creamsicle3.jpg

[jacksorbetta]

Cant believe I didnt see this thread earlier but whatever... Anyways glad to see that things went well for you Jacks, I wish you all the best and a speedy recovery..

Keep smiling.. :)


Glad to hear that things are getting better jacks. Each day will only get better.
Tyty. Much appreciated.


http://3.bp.blogspot.com/-ibRlrGDUwd4/Tz2xnD7-28I/AAAAAAAAAvg/goKvb9KJ_vE/s320/creamsicle3.jpg

LOL. You're such a great friend :). I'm getting a little creamcicled out though!

[jacksorbetta]

Day 6: incision looks a lot better, and I had zero pain today :). Does anyone want me to post a pic?

[Jimboski]

Day 6: incision looks a lot better, and I had zero pain today :). Does anyone want me to post a pic?

That's nice to hear that your recovery Is going well!

[cheapmeister]

Sure post a pic!

Btw, what do stitches feel like?

[Jimboski]

Sure post a pic!

Btw, what do stitches feel like?

They don't feel like anything.. Unless you mean when you touch them It would be a bit bumpy because of all the threading..

[45ED]

Day 6: incision looks a lot better, and I had zero pain today :). Does anyone want me to post a pic?

Has any stiffness gone away yet?

[jacksorbetta]

Stitches feel a little icky. I'm still hesitant to even touch them, except to apply Polysporin. They look and feel a little lumpy. It's quite odd to watch them heal into the skin each day.

Neck is still tender above and below the incision, and stiff turning side to side. I anticipate doing physio and/or massage therapy in another week or two. I'm still not driving, as it's probably a bit dangerous with limited mobility.

K, pic coming soon. I've been dealing with a sick kiddo today, and haven't had a chance yet.

[jacksorbetta]

Ok, 2 pics taken a few minutes ago.

#1: Low light, normal zoom (doesn't look bad!)

http://i47.tinypic.com/rjij3a.jpg

#2: Zoomed, flourescent lighting (looks yucky lol)

http://i50.tinypic.com/24dkod1.jpg

[cheapmeister]

Ok, 2 pics taken a few minutes ago.

#1: Low light, normal zoom (doesn't look bad!)

http://i47.tinypic.com/rjij3a.jpg

#2: Zoomed, flourescent lighting (looks yucky lol)

http://i50.tinypic.com/24dkod1.jpg

Looks like its healing in the 1st pic. The shine must be from the polysporin. Well it will only get better as time goes on!

[wilsonlam97]

Ok, 2 pics taken a few minutes ago.

#1: Low light, normal zoom (doesn't look bad!)

http://i47.tinypic.com/rjij3a.jpg

#2: Zoomed, flourescent lighting (looks yucky lol)

http://i50.tinypic.com/24dkod1.jpg

It looks like you got stitched up pretty well. You really gotta thank your surgeon because a lot of doctors make messy stitches. It looks like your stitches won't have any visible scaring after some time.

[Jimboski]

It looks like you got stitched up pretty well. You really gotta thank your surgeon because a lot of doctors make messy stitches. It looks like your stitches won't have any visible scaring after some time.

Yeah he did a good job IMO although I have nothing else to compare It to, Lol.

[wilsonlam97]

Yeah he did a good job IMO although I have nothing else to compare It to, Lol.

Neither do I lol. I've had friends that had stitches though and they usually turn out to be ugly scars:(

[ji2o0k]

Ok, 2 pics taken a few minutes ago.

#1: Low light, normal zoom (doesn't look bad!)

http://i47.tinypic.com/rjij3a.jpg

#2: Zoomed, flourescent lighting (looks yucky lol)

http://i50.tinypic.com/24dkod1.jpglooking good jacks! Healing along very nicely and soon enough, you will be as right as rain!

Oh, feel free to PM me more pics of your hawwwtt self....lol!

[jacksorbetta]

looking good jacks! Healing along very nicely and soon enough, you will be as right as rain!

Oh, feel free to PM me more pics of your hawwwtt self....lol!

LOL. Not sending out pics :P. Oh, I went out this morning and drove a little. Was a little awkward, but glad I managed to.

[4flava]

LOL. Not sending out pics :P. Oh, I went out this morning and drove a little. Was a little awkward, but glad I managed to.

WOW!

I had thyroid problems before.

Big ups to you and wishing you a quick recovery :)

[Forhad]

After thyroid surgery, most doctors will recommend you stay in bed the first day. Your doctor will, however, probably suggest that you begin moving about as soon as possible thereafter.

If you are hospitalized, you may remain on an intravenous drip for nutrition, as swallowing and eating can be difficult in the first day. If you are home, you may wish to try liquids or very soft foods until swallowing and chewing other foods is more comfortable.

[king_george]

LOL. Not sending out pics :P. Oh, I went out this morning and drove a little. Was a little awkward, but glad I managed to.

Looking much better. Tell your son it's an "undersmile"

[jacksorbetta]

9 months of waiting and testing....

[UrbanPoet]

Hello jacksorbetter.
I remember you used to play lottery with me.
I will pray for you. I wish you a speedy recovery and good treatment.

[trixstar]

i hope everything works out well for you. I've had cancer myself when I was a couple of months old and my gf's dad passed away with lung cancer and her grandmother was recently found with lung cancer as well. She'll be having surgery to remove one of her nodes in a week. Cancer really sucks and radioactive therapy really puts a toll on your body. Anyways, I wish you the best with your treatment

[jacksorbetta]

Hello jacksorbetter.
I remember you used to play lottery with me.
I will pray for you. I wish you a speedy recovery and good treatment.

Thanks hun. I'm trying to digest all this, even though I always knew somewhere in my brain I would get this result. Ack...so scary. I'm determined to take care of little things I've put off (like my yard reno) and have a fab vacation to Jamaica in Oct (before RAI treatment). I feel pretty good physically ATM, and want to take advantage of that :)

[Jimboski]

:cry:,
I wish you a speedy recovery also and that the treatment goes well for you.

[deltone]

Oh wow, Jacks, I'm so very sorry to read this update. I've been away and haven't had any internet since last week so tonight I've been trying to catch up. It makes me very sad to read this update. Please keep us updated and keep a positive attitude (I know, easy for me to say) but it's important. I don't pray so I won't pretend I will pray for you BUT I will keep you in my thoughts and I'm sending lots of good wishes your way. ((GENTLE HUGS))

[jacksorbetta]

i hope everything works out well for you. I've had cancer myself when I was a couple of months old and my gf's dad passed away with lung cancer and her grandmother was recently found with lung cancer as well. She'll be having surgery to remove one of her nodes in a week. Cancer really sucks and radioactive therapy really puts a toll on your body. Anyways, I wish you the best with your treatment

Thanks:). Best wishes to your family members also.

[jacksorbetta]

Oh wow, Jacks, I'm so very sorry to read this update. I've been away and haven't had any internet since last week so tonight I've been trying to catch up. It makes me very sad to read this update. Please keep us updated and keep a positive attitude (I know, easy for me to say) but it's important. I don't pray so I won't pretend I will pray for you BUT I will keep you in my thoughts and I'm sending lots of good wishes your way. ((GENTLE HUGS))


:cry:,
I wish you a speedy recovery also and that the treatment goes well for you.

Much appreciated, thanks.

Oh, I forgot to put in the update: tumour size: 6.4 cm. Size of an ORANGE. It grew from 3.9 cm since April.

[tkddad]

I wish you a speedy recovery, OP. Cancer sucks. I lost my grandma in 85 and my aunt in 05.

My mom had thyroid and my uncle had prostate a few years ago and they are both in good health right now.

I will run an extra km for you in September at the Terry Fox run :).

[kuhai2001]

Good luck. All Power 2 U

[EbonyRose]

Hi Jacks, I'm very sorry to hear about this update. I hope you're holding up ok. We're all here for you, if you need anything. I hope that you have a speedy recovery! *Hugz*

[aplayaz2000]

breaking bad

[ryanmission]

if it helps, thyroid cancer is one of the easiest cancers to cure...

[iEyeCaptain]

Sorry to hear this. I hope you have a speedy recovery and you can get back to hunting deals in no time! :)

[ji2o0k]

wishing you speedy recovery jacks....you have the RFD community for support and our thoughts and prayers are with you during your recovery....

[45ED]

:|...hugs for you...and lots of hugs for your boy. Hope he gets lots of hugs before everything really starts. Maybe buy him a teddy bear and call it a hug bank.

[lordnikon]

I wish you a speedy recovery. Keep fighting!

[steve-0101]

My thoughts are with you Jacks. Stay strong.

[dragon_drift]

JACKS, you have our support! Kick that cancer in the butt.

[Hairball]

Hope you get well soon jacks! :)

[setell]

Sorry to hear about the latest news jacks :( I wish you a speedy recovery and if you ever need to talk I'll be here. :) big hug!!!!!

[Said212]

Stay strong buddy! You got this.

[Shaner]

Make sure to update this thread when you beat this thing, which you will!

[fboybcb]

Best of luck Jacks! Stay strong!

[geokilla]

RFD Fighting! We're here for you girl!

[FightCanada]

Sorry to hear about the bad news.

I won't lie.. it's a tough journey but it will get better. I promise.. I made it through. Not sure if you will get the thyrogen shots, but 6 weeks of hypo is hellish but very survivable.

I wanted to offer some support and give you a link to a forum with thyroid cancer patients. It's helped me a lot when dealing with issues and getting support.

http://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/

[jacksorbetta]

Hugs received :). Big thank you's to all my friends here. It means a whole lot to me to have your support.


Sorry to hear about the bad news.

I won't lie.. it's a tough journey but it will get better. I promise.. I made it through. Not sure if you will get the thyrogen shots, but 6 weeks of hypo is hellish but very survivable.

I wanted to offer some support and give you a link to a forum with thyroid cancer patients. It's helped me a lot when dealing with issues and getting support.

http://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/

Thanks for the link. I'ma check it out later. No Thryogen as per my surgeon :(. They don't use that protocol. I'm going to try to get a referral to an Endo who DOES. There's no way I can function being hypo and taking care of my kid.

On the bright side, I'm now on 'vacation' indefinitely. My insurance company gave me the go-ahead to be off for likely 6 months.

[SkimGuy]

Good luck in fighting it off. Cancer patients are always the strongest IMO.
Never forget, you're never alone in this fight :)

[chickibum]

Wishing you and your family all the best, stay strong :)

[Simaahoy]

OP stay strong ❤

[danfromwaterloo]

It's official, I have cancer. :cry:

The surgeon gave me the news at 4:10 pm. In attendance was myself, Almighty Dr, 2 residents, and a clergy person. Huge crowd, tiny room. I knew it was bad news from the git-go.

Diagnosis: Papillary Thyroid Cancer, Follicular variant. Metastatic (meaning it has spread to lymph nodes, and possibly elsewhere). They apparently removed a bunch of nodes, and found 1 with cancer, and another with "suspicious for metastasis" . This means it's likely in a bunch of nodes already.

Next Step:

PET scan, MRI, bloodwork, and a bunch of other invasive crap I can't stomach.
Completion Thyroidectomy with neck dissection
6 weeks of being hypothyroid until I get the glamorous RAI treatment (radioactive iodine), and put into quarantine in the hospital.
another scan, tumour marker bloodwork, then meds


Wash, rinse, repeat every 3 months on the scans and bloodwork until scans are clean for a year, then annual testing there after.

I'm still in shock and progressing into anger-mostly that the Dr refused to remove the whole diseased gland to begin with. Now I have to suffer through a repeat surgery when it could have been avoided.>:(

Starting tomorrow, I'll be planning childcare etc for my recoup time. This won't be easy.....
-----------------------------------------------------------------------------------------------------------------------------------------------------

Original post:

I'm having surgery on Friday (the 13th :confused:) for a large solid mass they found in my thyroid. I'm pretty much freaking out, and hope someone can reassure me it's not horrible to go through.


Thanks.

Best of luck buddy. My boss had thyroid cancer and had a thyroidectomy. I believe he's now 1 year free of it.

I know that it has a very good survival rate, so we'll say a little prayer for ya.

[charlotte1983]

OP best of luck ... keep us posted!

[dmxlite]

Best of luck to you!

[najibs]

Jacks, as mentioned previously, sorry to hear the news. Why are they delaying the process until October? Shouldn't they dive into this ASAP to prevent it from spreading further?

[ssbtech]

Best of luck!

[hyperion]

I wish you the best of luck.

[Jucius Maximus]

Jacks! I am so sorry to hear about this.
You will make it through this with the strength and grace that you've always possessed. Our thoughts are with you!

[mself084]

Good lucks, jacks! We all know at least one person with cancer and know how hard it can be to deal with... I'll keep my fingers crossed!

[jacksorbetta]

Jacks, as mentioned previously, sorry to hear the news. Why are they delaying the process until October? Shouldn't they dive into this ASAP to prevent it from spreading further?
It's going to take that long for RAI (Radio Iodine), because it must be done 6 weeks after surgery (due to waiting for the TSH levels to rise).

I have a surgery date though!!!! Sept 7th

So, 5.5 weeks to wait until they get the rest of the thyroid out. The timing works, as I have a trip booked for mid Oct to Jamaica, and I return a week or so before RAI. I won't be able to travel for months after that (residual radiation).

Thanks again everyone for the nice things you've said.

[deltone]

Jacks, I know this is very easy for me to say, but even though I don't know you, I do know that you are a very strong person. You were chosen to raise a special child and your abilities and dedication are a testament to your strength. Dealing with cancer and other serious illnes requires a very positive attitude and the fact that you are still going on your trip shows you have that so I have a lot of faith that you will beat this SOB cancer.

[MrDisco]

Words seem a bit trivial in these situations but you'll bounce back from this. You still have a cookbook to write you slacker! :P

[AcidBomber]

Oh wow... Sorry to hear about your diagnosis Jacks.
Best wishes! Dont give up! :)

[jacksorbetta]

Jacks, I know this is very easy for me to say, but even though I don't know you, I do know that you are a very strong person. You were chosen to raise a special child and your abilities and dedication are a testament to your strength. Dealing with cancer and other serious illnes requires a very positive attitude and the fact that you are still going on your trip shows you have that so I have a lot of faith that you will beat this SOB cancer.

That's very sweet of you. I'm heartfully thankful to the show of support I'm getting from all the wonderful folks I know here :)


Words seem a bit trivial in these situations but you'll bounce back from this. You still have a cookbook to write you slacker! :P

Eeek, don't remind me :lol:. I'll add that to the bucket list.


Oh wow... Sorry to hear about your diagnosis Jacks.
Best wishes! Dont give up! :)

Thanks hun.

[jacksorbetta]

Jacks! I am so sorry to hear about this.
You will make it through this with the strength and grace that you've always possessed. Our thoughts are with you!

That made me cry. You are such a nice person. Please don't ever change.

[peanutz]

jax,

I don't know you that well. I just have little snapshots of you from brief moments in chat, or from lurking the video of your beautiful son (the one where he's playing the piano) that you openly shared with us strangers. Even this thread reveals a kind, sharing and trusting aspect of yourself. I had been quietly following this thread, and I recall smiling at you looking forward to your manicure...because I can understand how little treats like that keep you grounded when you're going through a bewildering time. Well, that is some terrible news and I can only hope for the best.

I am sure the support you will receive from those who know you will be amplified many more times.

[jacksorbetta]

I know I should start a blog, and I probably will, but for now I'd like to regularly update this thread if that's ok.

Anyway, today was not a good day. I had what I thought was a "cancer" day-I felt poorly from the time I woke up, and still do. Fatigue that can best be described as "crushing". I've felt so energetic and almost like my old self for almost 2 weeks and almost forgot how badly I was feeling. Ugh. I did absolutely nothing strenuous, and still needed to lay down.... which I wasn't able to do because some of my extended relatives showed up unannounced and stayed for 5 hours (ruining my plans for a nap). I ended up running to the grocery store, cooking dinner and cleaning up. The entire time I felt weak and like I would fall over if I stopped moving. My mom finally shoved me towards my room and told me to lay down and sleep for a while. I'm awake now after a late-day 2 hour nap, and finally feel like I won't vomit from exhaustion. :(

My endocrinologist phoned today with an appointment for me early next week. No idea what for (I can guess though), but seeing as they were quite insistent, I imagine it has to do with future treatment plans.

Well, that's the latest. Cancer sucks, but I'm making the best of it. Thanks again to everyone's support and kindness.

[deltone]

Jacks, I'm glad you are updating this thread. You have many people on here who do care and want to know what you are going through. I'm so very sorry you are feeling so horrible today. I wish I had words of wisdom for you but all I can really say is you are a remarkable woman. I followed your thread on how you did your landscaping project and I don't know how you do it. You are a strong woman, with all you have on your plate so you can do this. You shall beat this.

[Shaner]

I know I should start a blog, and I probably will, but for now I'd like to regularly update this thread if that's ok.

Anyway, today was not a good day. I had what I thought was a "cancer" day-I felt poorly from the time I woke up, and still do. Fatigue that can best be described as "crushing". I've felt so energetic and almost like my old self for almost 2 weeks and almost forgot how badly I was feeling. Ugh. I did absolutely nothing strenuous, and still needed to lay down.... which I wasn't able to do because some of my extended relatives showed up unannounced and stayed for 5 hours (ruining my plans for a nap). I ended up running to the grocery store, cooking dinner and cleaning up. The entire time I felt weak and like I would fall over if I stopped moving. My mom finally shoved me towards my room and told me to lay down and sleep for a while. I'm awake now after a late-day 2 hour nap, and finally feel like I won't vomit from exhaustion. :(

My endocrinologist phoned today with an appointment for me early next week. No idea what for (I can guess though), but seeing as they were quite insistent, I imagine it has to do with future treatment plans.

Well, that's the latest. Cancer sucks, but I'm making the best of it. Thanks again to everyone's support and kindness.

Not to say that cancer isn't hard on the body, but at this point, a lot of what you're feeling is probably mental. The mind really punishes the body sometimes. Just remember that. Beat this thing mentally before and after your treatment and the rest will come easy.

[rocheapplied]

Hi Jacks,

I know words are just words...My thoughts and prayers are with you right now.
Never, never, never give up. ~Winston Churchill

[deltone]

I agree with Shaner. Stress is VERY hard on a body. From what I do know about you, you are a very positive person and this positivity is going to work in your favour. I know it's hard but just keep doing what you've been doing and don't let any negativity creep into your thoughts. It will make all the difference.

[LaserEnvy]

Best wishes to you and your family. Cancer has gotten it's ***** kicked many times before. Now it's your turn to lay a beat down. We're cheering for you!

[Musiq Soulchild]

how old is op?

[Mr.Sea]

My father had thyroid cancer. He told us (the kids) after church the day before his schedule surgery. We were shocked. The surgery was successful and he made a full recovery after the iodine. Best of luck to you and your family.

[jacksorbetta]

how old is op?

I'm 40. Exactly the median age to be diagnosed with this.


My father had thyroid cancer. He told us (the kids) after church the day before his schedule surgery. We were shocked. The surgery was successful and he made a full recovery after the iodine. Best of luck to you and your family.

thanks, and thank you for sharing that.

[cheapmeister]

Hi Jacks! Sorry to hear the bad news about your cancer:( You mentioned that it spread to your lymph nodes. Well even lymph node cancer (hodgkins/non hodgkins lymphoma) can be beaten. I had a friend who beat non hodgkins lymphoma and is alive and active as ever today. Just stay postive and take it one day at a time. We are praying for you!

[rb]

sorry to hear, make this a positive if you can , do a blog, inspire others to volunteer at a cancer charity. My wife had breast cancer a few years ago and it was refreshing to read blogs on other peoples experiences.


Best wishes

[jacksorbetta]

Hi Jacks! Sorry to hear the bad news about your cancer:( You mentioned that it spread to your lymph nodes. Well even lymph node cancer (hodgkins/non hodgkins lymphoma) can be beaten. I had a friend who beat non hodgkins lymphoma and is alive and active as ever today. Just stay postive and take it one day at a time. We are praying for you!
I'll be having some tests done to determine exactly where it's spread to. Papillary cancer has a tendency to move quickly. The RAI treatment works on metastasis though, plus probable surgery to remove any nodes they find. Thanks for your well wishes :0

sorry to hear, make this a positive if you can , do a blog, inspire others to volunteer at a cancer charity. My wife had breast cancer a few years ago and it was refreshing to read blogs on other peoples experiences.


Best wishes

Thanks hun. Glad to hear your wife is recovered.

[jacksorbetta]

I'm fighting waves of panic most of the day now-due in part to lack of structure with my treatment plan. The fact is, there is no plan yet. I had a visit to one of the specialists yesterday, thinking she would have info for me, but it was more of a diagnosis confirmation and send off. I've been referred to the BC Cancer Agency (who take over everything) and I'm on a wait-list. Again. That doctor is out of the loop now.

So...another month until surgery, and meeting with the "team' in a month or 2 after that. This slow process is unbelievably stressful :(. I'm worried about having to go "hypo" for several months because they won't prescribe thyroid meds (which are life sustaining after surgery) until the Cancer agency gets their act together. Talk about sense of dread.

Anywho, today is slightly better than yesterday-at least I'm not hyperventilating.

[Shaner]

I'm fighting waves of panic most of the day now-due in part to lack of structure with my treatment plan. The fact is, there is no plan yet. I had a visit to one of the specialists yesterday, thinking she would have info for me, but it was more of a diagnosis confirmation and send off. I've been referred to the BC Cancer Agency (who take over everything) and I'm on a wait-list. Again. That doctor is out of the loop now.

So...another month until surgery, and meeting with the "team' in a month or 2 after that. This slow process is unbelievably stressful :(. I'm worried about having to go "hypo" for several months because they won't prescribe thyroid meds (which are life sustaining after surgery) until the Cancer agency gets their act together. Talk about sense of dread.

Anywho, today is slightly better than yesterday-at least I'm not hyperventilating.

I would keep on them, keep pushing, keep pressure on them. Don't let them make you wait without answers. If they can't get their act together, ask for a referral to a doctor in a different city or different province. Would be expensive, but worth it.

[jacksorbetta]

I would keep on them, keep pushing, keep pressure on them. Don't let them make you wait without answers. If they can't get their act together, ask for a referral to a doctor in a different city or different province. Would be expensive, but worth it.

If I had the resources, I'd be going to either Mayo or UofM. But alas, I spent all my lottery winnings on my house :p. I'm trying to nag as much as possible, but apathy rules the day with med professionals.

Thanks Shaner for the advice :)

[Shaner]

If I had the resources, I'd be going to either Mayo or UofM. But alas, I spent all my lottery winnings on my house :p. I'm trying to nag as much as possible, but apathy rules the day with med professionals.

Thanks Shaner for the advice :)

Yeah, clearly the states is out of the question as you would have done that already if you could afford it. Travelling to another province might not be out of the question though. keep on your doctor, and let him/her know that if they can't provide timely treatment, you want to be referred to someone else.

I don't know where you live or what's around you, but they can send you to another province to get treatment. It won't be cheap because you'd have to pay for travel and accomadations, but it would be better than being stressed out every day about nothing happening.

[deltone]

If I had the resources, I'd be going to either Mayo or UofM. But alas, I spent all my lottery winnings on my house :p. I'm trying to nag as much as possible, but apathy rules the day with med professionals.

Thanks Shaner for the advice :)

You are right, apathy does rule. It's disgraceful the way people are being treated. So sorry to hear about all of this stress jacks. Have they not figured out that putting this stress on the patient is not a good thing? I mean I know there are always going to be limitations but serously, there has to be a better way.

A friend of mine's sister had some sort of anurism (sp?) and the waiting time here in ON was ridiculous, even to just have an MRI so she called someone at the Mayo and she was there within a week and had the operation. BOOM, just like that. It cost her over $60,000 (if memory serves me correctly) but luckily they had the money. As I understand it, they decided to pay and then fight OHHIP after the fact. This was a few years ago and I'm not sure how their fight with OHIP went. I must ask my friend.

Anyhow, try, best as you can, to remain calm. (Ya, I know, easy for me to say). ((HUGS))

[Catherine111]

Get well soon!

[Cas77]

Just saw this thread (I don't venture into OT very often). I just want to say my thoughts and prayers are with you. :)

[frankyflwrs]

All the best to you Jacks....I can't begin to imagine what you must be going thru...you are in my prayers.

[Matrixvibe]

Sorry to hear Jax. My prayers go out to you! You've been through a lot, I'm sure you'll conquer this!

Best of luck and get well soon!!!!

http://i12.photobucket.com/albums/a206/Matrixvibe/RFD/Jacksgetwell.jpg

[45ED]

Bump

Bumping this thread since it's 6 days to the surgery.

Good luck jacks!

http://1funny.com/wp-content/uploads/2011/09/kitten-heels.jpg

[MrDisco]

Bump

that cat looks psychotic :cry:

[djemzine]

Yikes! I just read this thread and saw it was dated back in Jul 10th of this year.

Very unfortunate news. I wish you all the best! Get well soon!

[deltone]

Jacks, I've been thinking about you. I hope all is well and please update RFD. ((HUGS))

[jacksorbetta]

Thanks guys. I'm hanging in there. Had a bit of a few histrionic moments but I'm trying to keep it together. I have an appt for a 2nd opinion on Tues, as my current surgeon is a clown :(. They've made so many errors and communication snafu's I've basically lost confidence in him. I just feel the need to get another expert's take on the surgical procedure before I subject myself to this again.

I've been hiding out at home all month. It's been difficult emotionally to deal with all this and stay positive. Too many unanswered questions.

I'll update again on Tues and fill you in on the latest. Thanks everyone for your support.

[deltone]

Thanks guys. I'm hanging in there. Had a bit of a few histrionic moments but I'm trying to keep it together. I have an appt for a 2nd opinion on Tues, as my current surgeon is a clown :(. They've made so many errors and communication snafu's I've basically lost confidence in him. I just feel the need to get another expert's take on the surgical procedure before I subject myself to this again.

I've been hiding out at home all month. It's been difficult emotionally to deal with all this and stay positive. Too many unanswered questions.

I'll update again on Tues and fill you in on the latest. Thanks everyone for your support.

Jacks, you know that many of us are here for you. You hang in there girl! It's normal for you to be feeling this difficulty as would anyone feel this same way. I'm so sorry your surgeon is such an idiot. Sigh

I'm glad you are updating us as we are thinking about you!!

[Jimboski]

Jacks, you know that many of us are here for you. You hang in there girl! It's normal for you to be feeling this difficulty as would anyone feel this same way. I'm so sorry your surgeon is such an idiot. Sigh

I'm glad you are updating us as we are thinking about you!!

+1.

[ishfish]

Thanks for letting us know and for the quick visit.
I am sorry your dr has caused you to loose confidence in him. That is the last thing an ill person needs.

[BoogieWilliams]

Father removed thyroid a long time ago, nowdays its not that hard of a procedure. He actually got high blood pressure during the procedure and one of his veins popped and even with that the procedure went well.

[flypretty]

Keep on believing you'll be ok

[psyduck125]

-Best of luck with everything, all of this will be a breeze and blaze by
-Get outta the house! Don't be a hermit; not good for your state of mind. I subjected myself to this when I thought i was going blind, and literally accepted 'the end of my life.' At the very least, go to a starbucks -- whether it be company or and do some 'people watching.'
-I've been misdiagnosed with glaucoma/and a plethora of other ***** throughout my life, GET A SECOND/THIRD OPINION. Hate to generalize but from my own personal experiences (in before canadian doctors are <insert positive comment>/vitriol towards my post), canadian practitioners are ***** and hard to trust; consequence of the whole free healthcare system which is a discussion for another day. 'Miscommunication snafus' -- what the *****, how hard is it communicate with your colleagues when all of you are educated at the highest level and speak the same jargon. Regardless, the crux of my thoughts is as follows: if you don't feel comfortable with your current professional, find one that will make you at ease (period), it's the least you deserve, nothing less. Don't settle for anything less than awesome when it comes to dealing with your health.
-Everything will be fine, if it's not then that's that, deal with it when the time comes. Sitting here and theorizing what may/may not happen ain't gonna help the situation. Take everything step by step and you'll pull outta it fine, guaranteed. Fear/anxiety will only make the situation worse and add an extra burden on your body when you need every single ounce of energy to deal with your situation

[HughG]

Good Luck Jack. HOpe all goes well. Your in my prayers.

[t3359]

Best wishes, Jacks...

[Syne]

<3 <3 Jacks <3 <3

[jacksorbetta]

xoxo everyone. I sincerely appreciate the show of support.

Yes, a lot of it is fear. But what worries me at this particular point, is the actual surgery. To date, my surgeon hasn't discussed the specifics with me. I don't know if he's following the guidelines. I was under the understanding that a Completion surgery requires an overnight stay to check on calcium levels, but he's booked me for day surgery. Someone dropped the ball. Had he given me the time of day at my original appt back in July, I'd likely have more information. Things have snowballed from here. It's too convoluted to go into, but simple form is that I don't trust the decision making. Once my remaining thyroid is out, there's no turning back. There can't be any mistakes here-hence my need for a 2nd opinion. We'll see what the options are tomorrow.

[saadt1988]

I wish you a healthy and happy life

This might be a stupid question but what should a person do to avoid such cancers? Any food to avoid, exercise etc???

I have a problem of post nasal drip for many years and sometimes I feel that I might get a cancer because of it lol

Any help and advice would be appreciated

[CSK'sMom]

<------ saw this online and thought of you! :D :razz:

http://www.zazzle.com/thyroid_cancer_picked_the_wrong_diva_tee_shirt-235015997695053443 for a better view

[jacksorbetta]

<------ saw this online and thought of you! :D :razz:

http://www.zazzle.com/thyroid_cancer_picked_the_wrong_diva_tee_shirt-235015997695053443 for a better view

LOL. I'd wear it but I'm trying to not advertise to the world about this. My scar says enough.


I wish you a healthy and happy life

This might be a stupid question but what should a person do to avoid such cancers? Any food to avoid, exercise etc???

I have a problem of post nasal drip for many years and sometimes I feel that I might get a cancer because of it lol

Any help and advice would be appreciated

There's no way to avoid Thyroid cancer (outside of not working in a nuclear reactor). It's genetic in nature, and they don't know what causes it.

Go see an ENT for your sinus issue. My brother suffered with that for years, including an irritating cough. Turned out he needed tubes in his ears, and a minor sinus surgery to clear out scar tissue in his passages. It could also be something simple like an allergy. But don't ignore it!

[caliente]

Papillary thyroid cancer has an excellent prognosis in the vast majority of cases, EVEN when it has spread to lymph nodes. In addition, RAI provides relativvely targeted therapy for metastatic disease, in that thyroid tissue is the major - maybe even only? - user of iodine in the body and that's why the entire thyroid gland needs to be removed beforehand. The fact that you are female and young are also good from a prognostic point of view. Lots of steps in the management process, but here's to hoping you have the typical "bland" outcome, i.e. excellent!

You said you wished the entire thyroid had been removed the first time, but perhaps the plan was to possibly leave you with adequate thyroid function in the event it was not cancer? Thyroid cancer is common so please do not feel you *need* specialized expert care from Mayo or similar, which is terribly expensive. Cannot comment however on the administrative or bedside manner of the BC cancer agency or your team...

You don't have to answer, but were you ever against private or "two-tier" healthcare, which requires additional expenditure by patients? In high school, i would have personally said yes - especially since i essentially didn't use the healthcare system or experience the limitations of "universal" healthcare .

[steve-0101]

Assuming it didn't get rescheduled, I think you were scheduled for surgery yesterday Jacks. I sincerely hope everything went well and wish you a speedy recovery!

[CSK'sMom]

Jacks is good. Still in hospital at this point but doing well. :)

[steve-0101]

Jacks is good. Still in hospital at this point but doing well. :)

Glad to hear - thanks for the update.

[dragon_drift]

Wishing you a speedy recovery, Jacks!

[jacksorbetta]

Jacks is good. Still in hospital at this point but doing well. :)

Thanks hun for updating :)

I was finally released shortly after 7 pm on Sat. I begged all afternoon to be set loose-this hospital experience was horrific. The surgery itself wasn't too bad, but they way the nursing staff treated me was simply awful. I'm too tired to go into it right now, but sum it up to say I was the happiest I've ever felt in my life walking out of there.

I'm not entirely sure how long the actual procedure took, or what was involved. I never laid eyes on the surgeon. He swooped into the operating room just as they were putting me under- so I only heard his voice briefly, and he didn't come to check on me after. I guess I wait until my followup in 2 weeks to get the details.

The pain was pretty extreme the first night, as was my nausea. Didn't help matters any that I got zero sleep, and wasn't fed for 24 hours. On top of incision pain, I had the loudest growly stomch you've ever heard. :(. My scar was extended out another inch or so... making it now 6-7 inches long. It's pretty ugly, but I'm choosing to pretend it isn't there. It's not as sensitive or sore this time, I think probably due to the nerve damage from surgery #1 (which I'm thankful for!). I'm down to taking 2 Tramadol's every 8 hours for pain, and icing 3 times a day. I feel pretty weak and dizzy most of the time though-not sure if it's from the anesthetic or lack of thyroid hormones, low calcium or blood sugar. I was asked at least 8 times if I'm diabetic (not to my knowledge?)... makes me wonder if my blood results were showing I am? Of course, they don't tell you anything, so I'll have my GP order some blood work.

I slept almost the entire day today, waking up briefly to eat or drink something. When I stand or sit up for more than a few minutes, I get nauseous.

Anyway, that's the latest for now. It's been 2 days, and I'm relieved it's over with. Now I can move onto the actual cancer treatment, and hopefully be well enough to go back to work soon.

[PozzyD]

I'm not going to read this thread. This is not because I don't care, but because I get very emotional when I read about cancer. I don't stomach it well. I have tears in my eyes as I type this.

God bless you and help you in every way possible. From the bottom of my heart, I wish you nothing but the best. Please PM me when you get good news in the end. I'll be waiting.

[1010101010101]

Glad to hear everything went well. I hope the best for you!

[jacksorbetta]

Well, it looks like I'm basically done with treatments. I've had my consult with the Cancer Agency, and the Radiation Oncologist was undecided if I need the Radioative Iodine, so he's taking it to the Tumor Board in the next month or 2. I won't have an answer about that until probably Nov or Dec. If they decide against it, I'm released back to my family doctor, with a once-yearly visit to the ENT and ultrasound. All I can say is I hope they got it all :(.

As far as healing, my scar is still not completely closed up, and it sure is ugly. I'll probably seek a referral to a plastic surgeon in the new year to have it prettied up. Besides that, I'm still tired, my voice is hoarse with no volume or projection (the surgeon said it could take 6 months for the inflammation to go down on the vocal cords), and I have to continue taking 16 pills a day. Yikes.

[Cas77]

Well, it looks like I'm basically done with treatments. I've had my consult with the Cancer Agency, and the Radiation Oncologist was undecided if I need the Radioative Iodine, so he's taking it to the Tumor Board in the next month or 2. I won't have an answer about that until probably Nov or Dec. If they decide against it, I'm released back to my family doctor, with a once-yearly visit to the ENT and ultrasound. All I can say is I hope they got it all :(.

As far as healing, my scar is still not completely closed up, and it sure is ugly. I'll probably seek a referral to a plastic surgeon in the new year to have it prettied up. Besides that, I'm still tired, my voice is hoarse with no volume or projection (the surgeon said it could take 6 months for the inflammation to go down on the vocal cords), and I have to continue taking 16 pills a day. Yikes.

Awesome news mate!! I'm very happy for you and stay positive.

[cheapmeister]

Yea, think + not -

[tkddad]

Best of luck to you, Jacks. Fu*k Cancer.

[tkddad]

I wish you a healthy and happy life

This might be a stupid question but what should a person do to avoid such cancers? Any food to avoid, exercise etc???

I have a problem of post nasal drip for many years and sometimes I feel that I might get a cancer because of it lol

Any help and advice would be appreciated

Cancer and I are personal so I have done a lot of reading on the topic.

Two of the best books I have read on cancer prevention :

1. Anticancer by DAVID SERVAN-SCHREIBER

http://www.amazon.ca/Anticancer-New-Life-David-Servan-Schreiber/dp/1554682223/ref=sr_1_1?ie=UTF8&qid=1348319978&sr=8-1

2. Foods That Fight Cancer: Preventing Cancer through Diet by Richard Béliveau

http://www.amazon.ca/Foods-That-Fight-Cancer-Preventing/dp/0771011350/ref=pd_cp_b_0

[dragon_drift]

Hope you have a speedy recovery, jacks :)