Thyroid......Cancer. *update Sept 21st* (after surgery #2)-

[deltone]

I agree with Shaner. Stress is VERY hard on a body. From what I do know about you, you are a very positive person and this positivity is going to work in your favour. I know it's hard but just keep doing what you've been doing and don't let any negativity creep into your thoughts. It will make all the difference.

[LaserEnvy]

Best wishes to you and your family. Cancer has gotten it's ***** kicked many times before. Now it's your turn to lay a beat down. We're cheering for you!

[Musiq Soulchild]

how old is op?

[Mr.Sea]

My father had thyroid cancer. He told us (the kids) after church the day before his schedule surgery. We were shocked. The surgery was successful and he made a full recovery after the iodine. Best of luck to you and your family.

[jacksorbetta]

how old is op?

I'm 40. Exactly the median age to be diagnosed with this.

My father had thyroid cancer. He told us (the kids) after church the day before his schedule surgery. We were shocked. The surgery was successful and he made a full recovery after the iodine. Best of luck to you and your family.

thanks, and thank you for sharing that.

[cheapmeister]

Hi Jacks! Sorry to hear the bad news about your cancer You mentioned that it spread to your lymph nodes. Well even lymph node cancer (hodgkins/non hodgkins lymphoma) can be beaten. I had a friend who beat non hodgkins lymphoma and is alive and active as ever today. Just stay postive and take it one day at a time. We are praying for you!

[rb]

sorry to hear, make this a positive if you can , do a blog, inspire others to volunteer at a cancer charity. My wife had breast cancer a few years ago and it was refreshing to read blogs on other peoples experiences.


Best wishes

[jacksorbetta]

Hi Jacks! Sorry to hear the bad news about your cancer You mentioned that it spread to your lymph nodes. Well even lymph node cancer (hodgkins/non hodgkins lymphoma) can be beaten. I had a friend who beat non hodgkins lymphoma and is alive and active as ever today. Just stay postive and take it one day at a time. We are praying for you!

I'll be having some tests done to determine exactly where it's spread to. Papillary cancer has a tendency to move quickly. The RAI treatment works on metastasis though, plus probable surgery to remove any nodes they find. Thanks for your well wishes :0

sorry to hear, make this a positive if you can , do a blog, inspire others to volunteer at a cancer charity. My wife had breast cancer a few years ago and it was refreshing to read blogs on other peoples experiences.


Best wishes

Thanks hun. Glad to hear your wife is recovered.

[jacksorbetta]

I'm fighting waves of panic most of the day now-due in part to lack of structure with my treatment plan. The fact is, there is no plan yet. I had a visit to one of the specialists yesterday, thinking she would have info for me, but it was more of a diagnosis confirmation and send off. I've been referred to the BC Cancer Agency (who take over everything) and I'm on a wait-list. Again. That doctor is out of the loop now.

So...another month until surgery, and meeting with the "team' in a month or 2 after that. This slow process is unbelievably stressful . I'm worried about having to go "hypo" for several months because they won't prescribe thyroid meds (which are life sustaining after surgery) until the Cancer agency gets their act together. Talk about sense of dread.

Anywho, today is slightly better than yesterday-at least I'm not hyperventilating.

[Shaner]

I'm fighting waves of panic most of the day now-due in part to lack of structure with my treatment plan. The fact is, there is no plan yet. I had a visit to one of the specialists yesterday, thinking she would have info for me, but it was more of a diagnosis confirmation and send off. I've been referred to the BC Cancer Agency (who take over everything) and I'm on a wait-list. Again. That doctor is out of the loop now.

So...another month until surgery, and meeting with the "team' in a month or 2 after that. This slow process is unbelievably stressful . I'm worried about having to go "hypo" for several months because they won't prescribe thyroid meds (which are life sustaining after surgery) until the Cancer agency gets their act together. Talk about sense of dread.

Anywho, today is slightly better than yesterday-at least I'm not hyperventilating.

I would keep on them, keep pushing, keep pressure on them. Don't let them make you wait without answers. If they can't get their act together, ask for a referral to a doctor in a different city or different province. Would be expensive, but worth it.

[jacksorbetta]

I would keep on them, keep pushing, keep pressure on them. Don't let them make you wait without answers. If they can't get their act together, ask for a referral to a doctor in a different city or different province. Would be expensive, but worth it.

If I had the resources, I'd be going to either Mayo or UofM. But alas, I spent all my lottery winnings on my house :p. I'm trying to nag as much as possible, but apathy rules the day with med professionals.

Thanks Shaner for the advice

[Shaner]

If I had the resources, I'd be going to either Mayo or UofM. But alas, I spent all my lottery winnings on my house :p. I'm trying to nag as much as possible, but apathy rules the day with med professionals.

Thanks Shaner for the advice

Yeah, clearly the states is out of the question as you would have done that already if you could afford it. Travelling to another province might not be out of the question though. keep on your doctor, and let him/her know that if they can't provide timely treatment, you want to be referred to someone else.

I don't know where you live or what's around you, but they can send you to another province to get treatment. It won't be cheap because you'd have to pay for travel and accomadations, but it would be better than being stressed out every day about nothing happening.

[deltone]

If I had the resources, I'd be going to either Mayo or UofM. But alas, I spent all my lottery winnings on my house :p. I'm trying to nag as much as possible, but apathy rules the day with med professionals.

Thanks Shaner for the advice

You are right, apathy does rule. It's disgraceful the way people are being treated. So sorry to hear about all of this stress jacks. Have they not figured out that putting this stress on the patient is not a good thing? I mean I know there are always going to be limitations but serously, there has to be a better way.

A friend of mine's sister had some sort of anurism (sp?) and the waiting time here in ON was ridiculous, even to just have an MRI so she called someone at the Mayo and she was there within a week and had the operation. BOOM, just like that. It cost her over $60,000 (if memory serves me correctly) but luckily they had the money. As I understand it, they decided to pay and then fight OHHIP after the fact. This was a few years ago and I'm not sure how their fight with OHIP went. I must ask my friend.

Anyhow, try, best as you can, to remain calm. (Ya, I know, easy for me to say). ((HUGS))

[Catherine111]

Get well soon!

[Cas77]

Just saw this thread (I don't venture into OT very often). I just want to say my thoughts and prayers are with you.